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Posts with tag reality

Thought for the Day: Take TV shows depicting cancer with a grain of salt

A mother who lost her daughter to cancer had something to say on her blog about the depiction of childhood cancer and other cancers for that matter on television. I wanted to share her words.

Think about this:

I have just finished watching the new episode of "House." It was about a teenager who was facing a bone marrow transplant (his younger brother was to be the donor). So many things were unrealistic -- don't they consult with real doctors to get the facts? I think it was a couple of weeks ago that the episode of "Grey's Anatomy" also dealt with the topic of childhood cancer and a bone marrow transplant. It was even more unrealistic. One of the doctor's, "Izzy", ended up being the little girl's biological mother. The same day that she discovered that she was, they did a quick blood test and then harvested her bone marrow without any anesthesia and moments later they were infusing it into her daughter. Not quite the way it really works! It is quite frustrating to think that people are watching these shows and will get a false sense of reality -- and so many of us a working hard to get the word out about childhood cancer! Oh well, I am going to try to do my part to get the truth out. I am going to start working on a documentary that will share the reality of what so many families are living with.

Men with breast cancer likely to relapse

We all know breast cancer strikes women -- a lot of women -- but about 1,700 men also develop the disease each year in the United States. And while their risk of diagnosis is much more hopeful than the reality facing women, men with breast cancer face their own version of a not-so-rosy reality.

According to researchers at the University of California, Irvine, men treated for breast cancer face a very real chance of getting cancer again. Their study found that 11.5 percent of men with breast cancer develop second primary cancers -- mostly in the breast, stomach, and skin -- within two months following initial treatment.

"Even more disturbing, we found that men with breast cancer are diagnosed with later-stage disease and that patients with onset of the disease at a young age are even more likely to develop a second cancer," said Hoda Anton-Culver, chief of epidemiology in the UCI School of Medicine.

In light of these findings, researchers recommend men with breast cancer be closely monitored for a second onset of cancer.

Book about the realities of living with metastatic breast cancer

Holding Tight, Letting Go: Living with Metastatic Breast Cancer is a book written by Musa Mayer, a breast cancer survivor. Few books discuss the realities of metastatic breast cancer. Women with breast cancer live in fear of recurrence. For at least a third of those diagnosed, the disease will eventually spread. When this happens, most people assume it means an immediate death sentence.

The voices in this book speak of a different reality: that women with metastatic disease generally go on to live with their disease, often for many years, and that the time they have can be full and meaningful.

This is a great book for anyone dealing with metastatic breast cancer or even those who have been diagnosed and have a fear of recurrence. I read this book and it helps because my imagination can be far worse than the reality of the situation.

Here are a list of the chapter titles:

  • Voices of a Forgotten Population
  • Dread, Uncertainty and White-Water Rafting
  • Seventeen Stories of Metastatic Breast Cancer
  • The Shock of Recurrence
  • The Problem of Knowledge: Doctors, Information-Seeking and Statistics
  • Medical Treatments and Choices
  • Hope and Healing for the Rest of You: Complementary Therapies
  • Living with the Side Effects and Symptoms
  • Families and Friends Speak: "Its happening to us, too."
  • Light and Shadow: Stories of Remission, Work and Identity
  • Final Gifts: Disease Progression, Hard Choices, Last Days
  • Still Here: The Anatomy of Courage

The Journey Through Cancer: What Is The Purpose of Medicine?

My own oncologist did it just two days ago. He checked in on my mental health, asked how I was surviving, and eased my fear of cancer recurrence and possible death. He reached beyond the medical scope of our relationship -- literally. He placed a hand on my shoulder. He offered me a hug. He cared.

Yet many doctors refrain from reaching too far into the lives of the patients they treat. They stay at a distance. They focus on merely replacing illness with health. This is, after all, the purpose of medicine -- to fix people.

Dr. Jeremy Geffen, author of The Journey Through Cancer: Healing and Transforming the Whole Person, shares in his book that "at present, doctors focus primarily on the physical characteristics of their patients -- bones and organs, tissue samples, test results, height, weight, and age. Yet in each of us, there is a rich mental, emotional, and spiritual reality that influences, even directs the course of our lives."

Conventional medicine responds to cancer patients with surgery, chemotherapy, radiation, and other treatment protocols to essentially get rid of the cancer. Physical signs, symptoms, and responses are carefully monitored -- while other areas of patients' lives receive little attention.

A whole component of true medical care is missing -- as doctors may feel unprepared to address emotional issues, and time restraints allow for limited interaction between doctor and patient.

Geffen believes the ultimate purpose of medicine is to help all beings "experience unbounded love, joy, and inner peace, and to know this is the essence of who we truly are." This purpose, he believes, deserves as much attention as the purpose of treating symptoms and curing disease.

And so Geffen created a program based on his Seven Levels of Healing -- a program that includes both the relative and ultimate purposes of medicine, both the doing and the being.

Level One: Education and Information -- provides basic information about cancer and treatment options and encourages patients to actively participate in and obtain benefit from their care.

Level Two: Connection with Others -- explores the importance of reaching out to others for comfort and support on the journey through cancer.

Level Three: The Body as Garden -- invites patients and family members to see the human body as growing and evolving, as a complex garden rather than a machine. This level touches on good nutrition, exercise, massage, acupuncture, and a variety of complementary and alternative approaches to healing.

Level Four: Emotional Healing -- enters the realm of the human heart, shedding light on fear, pain, anger, self-love, and forgiveness.

Level Five: The Nature of Mind -- examines how life with cancer is influenced by our thoughts, beliefs, and the meanings we give events.

Level Six: Life Assessment -- delves into aspirations, goals, and purposes of our lives.

Level Seven: The Nature of Spirit -- embraces the spiritual aspects of the healing process.

As a physician, Geffen aims to bring his vision of medicine and healing to cancer patients everywhere. And he uses his book as an instrument of communication -- so readers can participate in his vision, so they can learn to settle for nothing less than medical care that centers on the whole person. And not just the parts.

To read previous posts on the same topic, visit:
The Journey Through Cancer: Introduction
Sunday Seven: Seven Levels of Healing on Cancer Journey

Stay tuned for:
The Journey Through Cancer: Beverly Is Every One Of Us

MTV reality show ends, contestant receives cancer treatment

The most recent season of MTV's Real World/Road Rules Challenge reality show has just ended. Customary after each season finale is a reunion show -- where a sampling of contestants recap their experiences, answer questions, confirm or dispel show rumors, and update viewers on the status of their post-television lives. The winners -- a twosome who took home $250,000 -- sit front and center at the reunion and get to bask in the glory of the physical and mental prowess that allowed them to win the big bucks. Two contestants clearly won -- they have the money to prove it. But another contestant -- who didn't take home a dime -- is the true winner in my book.

Diem Brown, 25, was cast on the MTV challenge show before she knew she had ovarian cancer. But prior to the start of the show, Brown did know of her diagnosis -- and she still decided after just a few treatments to head for Australia where she competed in physical stunts and tough competitions. The producers never knew of Brown's illness and she confided in only two castmates while she battled through fatigue and nausea to complete her own personal survival mission. She succeeded -- and she returned home victorious in her own right. And she has no regrets.

On the reunion show, Brown said the show made her more fierce, that she came out of the experience a stronger person, that she tried her hardest, put everything on the line, and didn't feel sorry for herself. And it put her mindset in a great place prior to returning home for continued treatment.

And now Brown is home. She is receiving treatment. And she is managing her foundation -- Live for the Challenge -- a wedding-type registry
where patients can register for wigs, prescriptions, anything critical to the management of their illness.

Ovarian cancer affects one in 50 women, mostly in a silent fashion -- with no overt symptoms until it's often too late. And there is currently no accurate screening for this life-threatening disease that can have tragic outcomes.

Brown seems to be managing just fine with the cancer she calls "the disease that whispers." She is strong, spunky, enthusiastic and positive about life, about her future. She is clearly a winner.

Reality show contestant tackles competitions, ovarian cancer

MTV is currently airing another installment of the Real World/Road Rules Challenge reality show. This season -- called Fresh Meat -- pairs former show contestants with individuals who have never before appeared on any MTV reality show. These new contestants -- the fresh meat -- compete with the veterans in tense and strenuous physical and mental challenges for an array of prizes and for a grand award of $250,000. Winning the money could be life-changing for any one of these participants. But for one woman, it could also be life-saving.

Diem Brown, 25, was cast on the MTV challenge show before hearing her diagnosis of ovarian cancer. She didn't want to regret passing on the opportunity so with two chemotherapy treatments completed and armed with medication to manage nausea and other side effects, she packed her bags and headed for Australia where her days consisted of challenging stunts and tough competition. She survived it all -- although fatigue and pain sometimes slowed her down -- and she is busy surviving ovarian cancer too.

Brown has started a foundation called Live for the Challenge -- kind of like a Make-A-Wish Foundation for patients who are stuggling with medical difficulties. And her own personal wish is that ovarian cancer -- "the disease that whispers" -- would get a megaphone to attract more attention and more research. Because one in 50 women will get ovarian cancer and with no accurate screening for this disease, it leads to tragic outcomes for many women.

It is clear that Brown is one tough contender -- both on TV and in her everyday life. And that makes her a winner no matter what.

Cancer surgery makes list as MTV memorable moment

MTV -- the ultimate source of music videos and pop culture -- has been around for 25 years now. And that amount of time makes for a lot of memories.

So in recognition of the entertainment MTV has offered over the years, Indystar.com, Indiana's #1 local media site, takes a walk down memory lane and counts down 25 best MTV memories. It's fitting that many of the memories include actual music -- although some may say MTV is not really about music anymore, with music videos hard to come by -- so Michael Jackson's 1983 14-minute video Thriller makes the list and so does the 1985 performances of Live Aid, a conglomeration of musicians who sang to raise money for famine relief in Ethiopia.

But many memories are not recollections of music videos -- or even musical performances. They are nostalgic remembrances of other media events -- like a kiss between Madonna and Britney Spears during an award show, the running of the popular Beavis and Butthead show and Remote Control game show, peeks into spring break extravaganzas, and roof-raising reality shows like The Real World and The Osbourne's.

And even one socially-conscious piece that aired to raise awareness of testicular cancer. On May 23, 2000, wacky, stunt-pulling comedian Tom Green let viewers into his private world, in an operating room while he underwent surgery to remove a cancerous testicle and several lymph nodes. Green survived the surgery well -- and he is surviving cancer still today -- and his public handling of a serious disease goes down in MTV history as something truly memorable.

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