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Posts with tag pale

Burned by the sun, scared for my life

I'm sad, worried, and frustrated because of what happened to me at the beach this past weekend. I got burned. Really burned.

I thought I did everything right. I applied sunscreen, even had my husband coat my back, shoulders, and hard-to-reach spots with the powerful lotion intended to block the sun's most damaging rays. I sat underneath an umbrella while watching my boys, their own pale bodies slathered in a baby sunblock potion, as they jumped, ran, and bounced in the waves. I reapplied my sunscreen after a short stint in the pool and a stroll on the sand left my skin feeling tender. Still, I sizzled. My back is red, the skin underneath my suit straps white as can be in contrast to the bright color it borders, My chest is red and sore and itchy with bumps.

I feel sick, like I've exponentially upped my risk for skin cancer. As a cancer survivor, I feel particularly vulnerable. I not only fear a return of breast cancer, you see. I fear other cancers too. My ultra white skin already puts me at risk for sun damage. My past forays into sunbathing don't help. What happened this weekend, I'm afraid, makes things worse.

Continue reading Burned by the sun, scared for my life

Know the signs and symptoms of myeloma

The American Cancer Society estimates that approximately 16,600 new cases of myeloma are diagnosed each year in the United States. Bone pain is the most common early symptom of myeloma. Most patients feel pain in their back or ribs, but it can occur in any bone. The pain is usually made worse by movement.

Patients fatigue more easily and often feel weak. They may also have a pale complexion from anemia which is a common medical problem for patients with myeloma and may contribute to the fatigue. If the disease progresses, the concentration of normal cells in the blood may also decrease. Headaches, bruising, nose bleeding, gastrointestinal bleeding, and tingling or numbness in extremities are all symptoms of myeloma.

Patients may have repeated infections because antibodies to invading viruses, bacteria or other disease agents are not made efficiently of in adequate amounts. Urinary tract, bronchial, lung, skin, or other sites of infection may be the first sign of the disease. In addition, recurrent infections may complicate the course of the disease.

Chemo is tough stuff

Chemo is tough stuff. That's what my oncologist told me the day I tracked her down on the phone and told her how awful I felt. I was weak, dizzy, pale, and as close to incoherent as I'd ever been. I was so out of sorts I was convinced I would jump out of my skin at the very moment this doctor implied all I needed was a firm grip on reality.

"Do you have enough support?" she asked. "Yep," I replied. I told her my mom lives right around the corner, my sister just a few miles away. I told her friends were delivering meals and my husband was coming home from work whenever I called for him. Help was just a phone call away, and I had plenty of it. What I didn't have was medical guidance about how my body was tolerating chemotherapy. That's why I needed her.

I hung up the phone that day having accomplished nothing. And I woke up the next morning barely able to walk. I crawled into my kitchen, grabbed a banana, sprawled out on the floor, inhaled some nutrition, and called my mom. I told her I needed to have my blood examined.

My mom transported me to my oncology clinic -- we had a genetic counseling appointment there anyway so it was convenient timing -- and before long, I was hand-delivered a mask and was swiftly escorted to my very own hospital room where I stayed for five days.

The day I was admitted to the hospital, my white blood counts were 700. My body was not tolerating chemotherapy. And I'll never know why my oncologist didn't know this, didn't call me in for an evaluation when so many signs were presenting themselves, didn't offer me more than her steadfast declaration that "chemo is tough stuff."

Yes, chemo is tough. And there are all sorts of expected side effects of the dreaded treatment that patients must endure. But there are many effects patients should not have to suck up, effects that warrant immediate medical attention and can be alleviated with the right intervention.

It took days of antibiotic treatment and a blood transfusion for my body to recover from its chemotherapy attack. I often wonder what would have happened had I toughed it out at home. I suspect the outcome could have been tragic.

If I ever have the occasion to preach about the dangers of chemotherapy, which is what I am doing here, I offer a firm warning about how difficult the treatments can be, how anyone with any string of worrisome side effects should seek medical help immediately, how any oncologist who doesn't respond to an outright cry for help should be fired.

I learned many lessons from my chemo crusade. I learned how to better help myself, and I learned to report right to the emergency room the second time my blood counts plummeted. I learned to demand the care I deserve, and I found an oncologist who is a warm and caring partner in my pursuit of health. And I learned that chemo is tougher than I ever imagined, too tough for some -- like me -- to go it alone.

Sunshine in the forecast for skin cancer prevention

Way back in my sun worshipping days -- when I longed for a golden tan, logged countless hours scorching my body, and ignored my grandma's warnings that my pale skin was just not tough enough for the sun's powerful rays -- I would have basked in joy over headlines now surfacing in the media. They go something like this: the sun may actually fight skin cancer instead of causing it.

According to a team of scientists at the University of New Mexico's Cancer Research and Treatment Center, a little bit of ultraviolet B light is enough to stimulate a vitamin D immune response in the skin -- but it's not enough to boost skin cancer risk.

It's still true that sunlight is the main cause of skin cancer. But limiting exposure is the key to preventing the disease -- and for promoting bone health and perhaps preventing colon cancer too.

Researchers, whose findings are published in the March issue of
Nature Immunology, suggest staying out of the sun for now -- because they don't yet know what constitutes a little bit when it comes to UVB rays.

Children somehow find rainbows in midst of cloudy days

Kids can be so positive and encouraging, even in the face of sickness. Now today my kids have just a simple sickness -- nothing life-threatening -- that I'm sure will pass in a day or so. They are throwing up every content of their little tummies -- even sips of water -- and they are pale and lethargic and run-down. But still, they have hope for a brighter tomorrow. This morning, five-year-old Joey said to me while resting in my bed and just after he threw up , "this is just the good getting rid of the bad." He went on to explain how the good in our bodies knows when to push the bad out. And this is what is happening to him today, he said. He is throwing up the bad so the good can take over. Simple. Easy. Makes sense.

I never saw my own sickness like this. Instead of visualizing chemotherapy as a good agent that kills bad cells, I was repulsed by the horrific liquids that poisoned my body. I knew of people who were able to turn chemotherapy into a Pac-Man game -- with Pac Man chomping away at the cancer cells and leaving nothing but healthy cells to thrive. And I knew people who were relieved to feel sick because it meant the chemotherapy was working. I never saw it like this -- although I do know that chemotherapy may have saved me from a life with cancer. I was discouraged by chemotherapy. I had a negative attitude about it, and I had to really gear up for all of my infusions. I still -- more than one year later -- cannot eat anything I ate on my chemo days. The mere thought of these foods makes me feel ill.

A pediatrician friend of mine told me that kids with cancer tend to be positive. There are a few old souls, she said, but for the most part, they continue to tackle life with spirit and adventure and simplicity. Like my boys today who are peacefully napping at the moment so everything good in their bodies can come back with a vengeance.

Young girls shun the sun at higher cancer risk and bone loss

Between pale is the new tan and cultural or religious beliefs that require young girls to wear clothing that covers all skin areas and young girls who are restricted from outdoor activities, adolescent girls are paying the price in insufficient levels of vitamin D needed for peak bone mass -- increasing the risk of osteoporosis fracture later in life. By shunning the sun they might be decreasing the risks for skin cancer, but they are increasing the risks for 16 other cancers.

Of the 51 healthy girls tested, Saint Mary's Hospital for Women and Children in Manchester researchers found 73 percent were vitamin D deficient, and 17 percent were severely deficient in vitamin D.

Lack of a sufficient level of vitamin D was in direct correlation to the lack of exposure to sun and not to dietary intake. "This is in keeping with the fact that the main source of vitamin D is that produced by the action of solar ultraviolet B radiation acting on 7-dehydrocholesterol in skin," the team explains. "Only small amounts are obtained from dietary sources."

Aside from encouraging more outdoor activity for these young girls, the researchers stated that it remains to be determined how to meet the needs of older children and adolescents from cultures that avoid sunlight.

Facing the Mirror: celebrity makeup artist shares beauty tips for cancer patients

Makeup artist Lori Ovitz has taken her twenty years of cosmetics experience in making celebrities and top models look beautiful, and written Facing the Mirror with Cancer, a book of tips and techniques to help cancer patients look less tired and create a natural glow at a time when cancer treatments can take a physical toll.

Ovitz began volunteering at University of Chicago hospitals working with cancer patients to teach them how to enhance their personal appearance using makeup. According to Ovitz, "Makeup is a very accessible, inexpensive way to make significant changes to your appearance. The tremendous gratitude that I've received from each patient I've worked with inspired me to write Facing the Mirror with Cancer -- A Guide to Using Makeup to make a Difference."

To publish her book, Ovitz and her husband Bruce, a 35 year cancer survivor, created Belle Press -- named to honor the memory of her grandmother Belle Michel -- so that 50 percent of the profits from the book could go to cancer research.

"Cancer does not have to rob you of self-esteem or beauty. By teaching cancer patients how to apply makeup, I've seen firsthand what an incredible transformation occurs in their appearance and how much better they feel about themselves. I've written this book because I want to reach cancer patients everywhere so they can learn the tricks of my trade," Lori Ovitz states with assurance.

You can order Facing the Mirror with Cancer, a 200-page book featuring step-by-step tips and techniques for dealing with appearance issues during cancer treatment and beyond, here.

Confessions and regrets from a former sun worshiper

I confess. I was once a sun worshiper. I grew up in Ohio where a really sunny day was rare -- so on the occasion when the sun was bright and hot, I was in my back yard or at a swimming pool or at a lake soaking up the warmth and comfort of the rays that mostly burned my skin but gave me a glow that eventually turned the slightest shade of tan and made me feel healthy. It's ironic really -- that I felt healthy when the act of sunbathing is so completely damaging. And I knew this at the time and for the many years that followed -- and I still basked in the sun and vacationed in Florida and sometimes actually drove in the direction of the sun on a overcast day, in search of a tan that was never fully achieved because my skin is pale and fair and was never meant for any amount of sun exposure.

Continue reading Confessions and regrets from a former sun worshiper

Patchwork of support provides daily comfort, warmth

I see and use my handmade quilt every day. It was created especially for me by more than 20 talented friends who crafted the lavender, pale green, and white patches into a flowered work of beauty and serenity and warmth. It sits at the end of my bed -- folded neatly and by coincidence matching the color scheme of my room -- until the time at which I turn in for the night and I spread it out and allow it to comfort me and warm me. It has covered me every night since the night it was delivered to my doorstep by a few of the friends who helped make it -- and the peace it brings me today is no less than the peace it brought me the first night I used it -- the night when I was weak and sick and struggling with breast cancer.

Continue reading Patchwork of support provides daily comfort, warmth

Pale and proud of it: young girls inspired by Nicole Kidman

Celebrities can bring awareness to cancer causes. Celebrities can attract money to cancer fundraisers. Celebrities influence our society in fashion and lifestyle trends. Whether you are one who thinks celebrities have too much influence, and wondering why there seems a global obsession with celebrity -- or you are someone who applauds the efforts of those who have risen to success in fame and fortune and take time to give back, there is no doubting celebrities have power. And even when celebrities aren't trying to make a difference, they do, by the simple fact they are a celebrity.

A news story out of Canada is reporting that young girls, inspired by fair-skinned celebrities like Australian actress Nicole Kidman, are rejecting the fashion standard that a tan makes you attractive and embracing what they are calling the pale and proud of it attitude. When it comes to reducing the rising incidence of skin cancer, this couldn't come as better news. Really good news since it is in the young where a shocking number of new skin cancer cases are being diagnosed, a trend that is fairly recent to our times.

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